Briefing 221

December 2017

Foetal Alcohol Spectrum Disorder: A Guide for Adult Social Care

Introduction

Foetal Alcohol Spectrum Disorder (FASD) is the collective term used to describe 5 specific conditions that are caused directly by women drinking during pregnancy.

Alcohol is a teratogen-a substance that is known to directly cause malformations in a foetus and interfere with its development. Difficulties may not be apparent in early childhood, and may occur at different stages of development, including in adulthood.

It is important that those practitioners working with adults who have a FASD condition understand the difficulties that they may experience and the nature of the support they may require.

FASD Conditions 

The 5 Foetal Alcohol Spectrum Disorder conditions are:

  1. Foetal Alcohol Syndrome (FAS);
  2. Alcohol Related Birth Defects (ARBD);
  3. Alcohol Related Neurological Defects (ARND);
  4. Foetal Alcohol Effects (FAE); and
  5. Partial Foetal Alcohol Syndrome.

The most widely recognised of the conditions is Foetal Alcohol Syndrome (FAS) which, because of the core physical defects it causes is normally diagnosed shortly after birth. However, FAS is not the most common form of FASD, and most people with a condition will have no physical symptoms, even though their brain will still be damaged.

The type of difficulty experienced by a person with FASD is directly related to the nature of the brain damage that has occurred. This correlates to the stage in pregnancy where the woman was drinking alcohol, a summary of which is provided in the table below:

 Week Development of 
 0-4  Heart, spinal column, liver, kidney, intestines
 4-8  Eyes, legs, hands, mouth and lips, eyelids, palate, toes and nose
 8-10  Hearing, teeth, facial expressions, head movement, breathing
 11-12  Fine motor skills, vocal cords, sucking
 12-16  Taste buds, bone marrow, increase heart activity leading to rapid growth
 0-16  Central nervous system

Difficulties in Adulthood

Depending on the effectiveness of any treatment received or strategies developed in childhood, a range of difficulties could be taken through to adulthood. These can be physical, but are more often than not functional. New functional difficulties can also appear, as the adult is faced with unfamiliar situations that were not present in childhood (for example having to manage money or work).

Physical Difficulties

Movement and co-ordination difficulties
Conditions associated with heart, kidney and lung damage
Hearing or sight impairments

Functional Difficulties

Difficulty understanding abstract concepts (money, time)
Impaired social skills
Problems with memory
Problems maintaining concentration and focus
Poor judgement and impulsive behaviours
Difficulty managing and controlling emotion
Inability to distinguish between appropriate and inappropriate behaviour
Inability to learn consequences

Other Difficulties

Low self esteem
Anxiety and depression

Care and Support for an Adult with FASD

The care and support that any adult needs must always be based on an assessment of individual need and subsequent determination of eligibility. However, based upon the outcomes defined in the Care Act 2014 the following table suggests some of the care and support needs that may exist:

Outcome   Care and Support 
 Manage and maintain nutrition Preparing and cooking complex meals
Shopping lists and budgeting
Understanding healthy eating
 Maintain personal hygiene Strategies to build personal care into daily routine
To make and keep appointments e.g. dentist
Taking medication on time
 Manage toilet needs Rails to support independent transfer
 Being appropriately clothed Support with socks, zips, buttons, laces
Understanding appropriate clothing choices
Washing clothing
 Be able to make use of the home safely Mobility support
Support to access upstairs areas, or external areas
Maintain a habitable home environment Strategies to build housework into daily routines
Support to carry out more complex tasks
 Develop/maintain family and other personal relationships Making arrangements to see family or friends
Using social media safely
 Access/engage in work, training, education or volunteering Finding employment or a learning opportunity
Settling into a routine of work
 Make use of community services Identifying local community services
Developing confidence to access services
Learning to drive or use community transport safely
Carry out caring responsibilities for a child Building a parenting routine
Taking breaks from caring

If an adult has particular difficulties managing aspects of their behaviour or developing effective routines a referral to available psychology services should also be considered, and the adult should always be provided with information about any local support dedicated to FASD.

Further information about FASD

The National Organisation for Foetal Alcohol Syndrome-UK
http://www.nofas-uk.org/?p=163

FASD Network UK
http://www.fasdnetwork.org

The FASD Trust
https://www.fasdtrust.co.uk/

 

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